Katelyn is finally taking a nap! Yesterday we had quite the dramafest during both naptime and bedtime. I had a doctors appointment during her usual nap time and desperately tried to put her down for a nap. She wouldn't have it. She cried for 45 minutes before I left. The nurse who watched her while I was gone said she just played in her crib the whole time. She didn't take a nap all day. It was tough. Todd and I tried to get her down at 8:30 last night. I was sure she would sleep soundly due to the lack of sleep during the day; boy, was I wrong. Todd left and she screamed "Mommy" for nearly 45 minutes. I tried everything... singing to her, rocking her, ignoring her... etc. I even brought her to bed with me & she wanted to play, so I put her in her crib again. Eventually, she ended up in bed with me, and after multiple warnings that she had to go to sleep or she would go in her crip, she finally went to sleep. I think she has a lack of stimulation at this point. She can't go in the halls, outside, or to the playroom. She has been stranded in our room and looks to be that way for about another week. I need to interchange some toys and bring in something new for her to do, as she can only stack blocks, color, and play with Mr Potato Head so many times (those are her favorites). I need to find more ways to occupy her and stimulate her. Any ideas would be greatly appreciated.
We are hoping that her counts will start to come up in the next week or so. The last round only took about 15 days for her ANC to rise, and we're nearing 15 days. I hope that it starts to come up a bit soon. Todd and I hope that if it comes up high enough and we are settled enough in our place we might bring her home for a few days. I know she'll love home cooked meals and familiar surroundings! It will be amazing to have our little family home again. I do worry that it will make it more difficult for her to come back to the hospital. Some of the nurses think that she will do just fine coming back. I don't know what to expect, I guess we will just have to wait and see.
Todd went up to Kaplan yesterday. After numerous phone calls and getting the roundabout numerous times, he finally just went up there to get things done. He was able to contace the right person and they are sending his certificate of completion in the mail this week! Yay! He also signed up for an NCLEX refresher course, I believe it is next week. He has a lot of studying to do before hand. I am so proud of him and so excited to finally see these steps being taken. He'll take the refresher course, mail in his certificate & finger prints and be able to take the test! Once he passes (which I believe he will, but prayers are always welcome :), he is a Licenced Vocational Nurse & can start working in the medical field! Yay! I'm sure as soon as he's working, he will get back into school to step up as an RN. He'll have more opportunities and much better pay as an RN. He's anxious and I am excited!
Little Miss Katelyn just woke up! Love to ALL!
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3 comments:
Hi Devermann Family,
Just wanted to let you know I have a little friend that has AMKL as well. She has already been through her transplant and is doing well! Just thought you might find some comfort in talking to another family on familiar ground. Her name is Hanna Holliday she is a little over 1yr old and you can read her story at www.caringbridge.org/visit/hannaholliday .
Cole’s (Caring Openly, Loving Eternally) prayer team
www.colesfoundation.com
Love,
Mel
Hello Devermann Family
I am a leukemia and bone marrow transplant survivor of 13 years come the 23rd of this month. So I have an idea what your little Kate is going through. I wonder would the hospital allow you to bring in an unopened, new Mr. Potato Head for your daughter to play with that way she has something to do. I know how boring it is to be stuck in a room because of a weakened immune system. I had TV and a few other things that friends and family brought for me. I will be in prayer for your family especially little Kate. I was 17 and already graduated high school when I was diagnosed. It was nice not to have that burden on me or my family. Oh just so you know the reason I have bone marrow transplant is that I relapsed twice. I pray that Kate will never have to go through much more than what she already experienced. As I said you will all be in my prayers.
God Bless
Ruth
So happy that Todd is going to be in the nursing field soon, I always knew that was his true calling. I will pray for his success, and of course continue to pray for princess Kate.
Prayers that you are getting some rest and cant wait for the new bundle of joy. :)
thinking about you.
Love,
Megs
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