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Kate did well during the procedures yesterday. The hard part was her being unable to eat all day. Poor girl was starving. It is hearbreaking when your child is hungry and you can't give them anything to eat or drink. She kept telling us she was hungry and she wanted food, always accompanied with a "please" and tears. It is heartbreaking. She came out of the anestesia well and had dinner waiting for her in the room. During her procedures we were very upset with how we were treated by her treating anestesiologist. Our doctors told us that one of us would be able to be present for the procedures, including the CT. The anestesiologist didn't want to talk to us about risks or give us her opinion on the procedure, she was very rude to us. Once Katelyn was asleep she kicked both of us out, although we were told that Todd could stand behind the glass and watch after her. At that point we were frusterated. Once Kate was rolled out of the room we went to the PACU, where the Echo and skin biopsy were to be performed... the anestesiologist, again with a rude demeanor, told Todd her couldn't go in the room. Every persone we spoke with prior to the procedures told us we would be present during the procedures. That was part of the reason we agreed to do them. As soon as the anestesiologist closed the door behind her, we went looking for someone to complain to. The way we were treated was ridiculous & unprofessional & our caregivers should have been better informed on policy and not made promises that they couldn't keep. Although we were confident that everything would go well, we had anticipated Todd being able to be present to support Katelyn. It was a rough afternoon. Thankfully, Kate did well and they got all the tests they needed.

Now we wait for results. When, we don't know. Usually one thing will come back at a time. As soon as we have some more info I will update again.

On a positive note, prayers are working! It has been over 24 hours since Kate's last fever! Yay! We are so thankful that she is feeling better and hope that she will soon be back to the halls and will be able to be out and about!

She is such a strong and incredible child. I am so thankful for everything about her. She has this way of brightening up a room, and anyone who comes in contact with her feels her energy and can't help but be happy. She is coming into the terrible two's though. I know the fevers, hospital, lack of decent food, and lack of stimulation aren't making it any easier. I don't blame her for being upset and fed up. I think we're all getting there. We just can't wait to get out of here. It will be such a blessing to get back to life. I want a vacation. I think both Todd and I are due for some R&R with our little family. Maybe we'll try and take a trip this summer to relax and celebrate our little family.

Thank you for your thoughts, prayers & support. Please continue to pray for our little Kate.

Love,
Krystal