As I mentioned in my previous post, the Doctor who told us Katelyn could be in remission was not her usual doctor. She looked at her most recent bone marrow results and reported what she saw. On Monday Todd and I spoke to one of Katelyns primary Oncologists. I mentioned that another Doctor said Katelyn could be in remission and she said she "wouldn't put it that way". There were significant changes in Katelyn's test results, and they were encouraging. She reacted very well to to the chemo last time, and shows a significant decrease in leukemia cells from her bone marrow results. It also doesn't show the trisome that it previously showed. It did show more blasts than previously. She now has around 6% blasts and it was 2% in the beginning. The blasts aren't considered "bad", which is encouraging. So, to make it short, Kate did really well with the last chemo, she isn't in complete remission, but we have hope that the next round could put her there.
Her ANC went up dramatically from yesterday. Our goal is for it to be over 500, preferably 750 or higher so we can start chemo and she can have visitors. Yesterday it was 320 and today it went up to 850. We are doing a bone marrow aspiration tomorrow, as well as starting her spinal chemo. We will wait one more day to measure her ANC, and if it stays steady, above 500, we will start her IV chemo. This round will be 8 days and, again, be a big waiting game. We hope her ANC doesn't take as long to come up next time.
She has been unhooked from her IV pole for the last three days, and it has been wonderful. She truly loves her freedom, and it is much less stressful on todd and I. We don't have to constantly be by her side to make sure she doesn't tug on her lines or get caught. She is loving her freedom. Although we're anxious to start chemo, to get it over with, it's nice not being hooked up. We are glad to have a few more days of freedom from the tower.
Thanks to everyone for their kind words, thoughts, and prayers!
Love,
Krystal
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2 comments:
Hi Krystal & Todd!
I don't know if you remember me or not, but I'm Mike Seifert's sister, Kate. I just recently learned about your daughter and felt compelled to reach out. I can't do much financially, but if there's ANYTHING I can do, please just let me know. My thoughts and prayers are with you, Todd, Kate and your little "peanut" as well.
I'm going to get in touch with Jeff tomorrow morning and see if I can at least volunteer at the golf tourney. I live in the Estates, so the course is minutes from my house.
You've got an amazing little girl on your hands...she's quite a beautiful little fighter!
Sincerely,
Kate
Krystal and Todd,
I have been in communication with Katelyn's aunt, Irene Daleo. She told me about your little girl, the website, and yes, she is correct, you have a beautiful little girl. More importantly is the attitude you take into this. Your faith and belief in God and His ability to heal will do more than anything any doctor or hospital will be able to accomplish. I admire your strong faith, and that will be the determining factor with your daughter's recovery. Despite the negative prognosis, she is in good hands, not only yours, but those of Our Father. I believe she is going to be a medical marvel, not by the chemo treatment, but by the grace and power of Yahweh Rophe, The Lord Who Heals. Stay united, remain faithful, and look to Our Lord, who has told us that we will have hard times in this world, but to be of good cheer because He has conquered the world.
God bless you and continue to protect and heal your family.
Sincerely,
Marc Dewease
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