The Diagnosis

We sat down with her doctors today and we definitely didn't like what they had to say. She has a rare form of leukemia, called AMKL. I can't even spell what that acronym means. We have a lot of research to do and we will be here for awhile. What I do know is that the specific form of AMKL that she has is most common in down syndrome children. There are only 40 cases of typical children with AMKL. Some have beaten it, but like i said there are only 40 known cases, ever. Typically remission is about 9 months. After three heavy doses of chemo she'll have a bone marrow transplant. I'll be tested, and will look into having the babies placenta or chord blood tested as well, if neither of us are a match (or todd), we'll look into chord blood banks & willing donors. This really sucks. I don't know what to say. We'll be starting chemo Monday. I'll keep posting. Both Todd and my family is on their way down here so we can tell them just what I wrote above. I'll continue to update as I know more and as we go through this trialsome time.