Day 8

Kate had another bone marrow biopsy this morning. She woke up to the little girl next to her screaming, so instead of a peaceful wake, she woke up startled and crying herself. I think she was in pain. The doctors said that sometimes the anestesia doesn't ware off well. After some painful crying and refusing to drink or eat they gave her a very small dose of morphine. After the morphine she drank & ate a little bit and insisted that I lay down with her. We took a nap for a few hours. She hasn't had much of an appetite the last few days. She still drinks well, but isn't eating well. Anyway, the reason we did another bone marrow biopsy is because yesterday's labs showed new young cells. We want to make sure those cells are healthy cells. Her diagnosis is still unknown and really they have no idea what is going on with her. She had more platelats last night because they keep dropping. Her red blood cells have stayed steady the last few days, which is great news. Now if only we could find out why this is happening.

I'm not sure if I mentioned that we refused to do the IVIG the other night. We weren't happy with the nurse and we weren't able to talk to the doctor and ask the questions we wanted to ask either. The next day the doctor said it was totally ok that we didn't do it, it was mostly just a trial thing anyway.

I feel like I've been very patient and very together. I'm starting to lose my patience. I just want my daughter to be better so we can go back home, as a family, and get back to life.

Keep our family, especially Kate, in your prayers.